richmond hill — On the rooftop balcony of the Krasman Centre, a small group crowds around a weather-beaten, umbrella-covered patio table. Cigarette butts and bits of winter waste are scattered about them on the ground. But the elegant old trees and quaint homes of the Toronto suburb are visible from up here, and, after a bitterly cold spring, the warm June breeze animates the group, particularly the women, who trade spirited complaints.
“When I told my shrink I was using alcohol, he gave me drugs. Since then, I’ve gained twenty-five pounds, and I don’t even know if they work,” Christiane says with a French-Canadian twang. The petite forty-five-year-old wears a windbreaker to conceal the Effexor bulge around her midriff. “I’d like to see someone else, but it will take months to get an appointment.”
“I’m an addictive personality. That’s why I’m staying away from drugs, and my shrink knows it,” quips Mary, who’s about ten years younger and sports an olive green hoodie and hip-hugger jeans. “For anxiety, I use different strategies, like taking baths. I don’t even care if the bath goes cold.”
The two women and a withdrawn, middle-aged man named John have gathered here for their weekly Pathways to Recovery meeting, facilitated by Krasman staff member and psychiatric survivor Matteo Castelli. The therapy program for people who identify as having a mental health or substance abuse issue was developed at the University of Kansas in 2002, but the notion of recovery can be traced back to Alcoholics Anonymous, a “fellowship of men and women” focused on sobriety that was founded in the 1930s. A decade later, recovery crossed over into the field of mental health when a group of former patients at the Rockland State (Mental) Hospital in New York banded together to form their own self-help community and, eventually, Manhattan’s Fountain House, the model for 400 such “Clubhouses” worldwide.
However, the modern recovery movement really grew out of the grassroots patients’ rights and advocacy groups that sprang up all over North America in the 1960s and ’70s, in response to the idea of incurable, biologically based mental illnesses psychiatry was saddling patients with. Inspired by anecdotal and empirical evidence (led by a 1979 World Health Organization study that found the rate of recovery from schizophrenia was at least 50 percent higher in developing countries, where there are almost no psychiatric services), self-described “consumer/survivors” stopped taking their medications and discovered that together, without psychiatry, they could not only function, but heal.
Today recovery is a fully realized and internationally recognized approach to attaining wellness. Just a week before this Pathways meeting, several hundred delegates attended a conference on the movement in Toronto, with presentations by thirty experts, mostly consumer/survivors, from all over North America, as well as India, Ireland, England, Germany, and Sweden. Still, it’s hard to pin down an exact definition of recovery. Tanya Shute, the executive director of Krasman and another survivor, describes it as “a person’s ability to self-actualize, with or despite one’s mental health experience.” Elaine Amsterdam of Toronto’s Gerstein Crisis Centres says, “It’s about living well,” adding, “The meaning of that is different for everyone and can include a range of different approaches.” But the whiteboard that hangs on the centre’s kitchen wall notes five key concepts in indelible black ink: hope, personal responsibility, education, self-advocacy, and support.
Out on the roof, the Pathways workbooks lie unopened as Christiane and Matteo discuss how well his first play, The Recovering, was received last Saturday night when it opened at a church up the street. Christiane, who was among an ensemble drawn entirely from Krasman visitors, admits she will miss the weekly rehearsals and especially the cast, a new community of friends. “Sometimes we went to a local bar afterwards for a beer.”
“That must’ve been fun,” Mary says encouragingly.
“Yeah. We went out last week, after our last rehearsal,” Christiane continues, her voice dropping suddenly. She fidgets nervously with the straps of her purse. “After a while, everyone wanted to go home, and I didn’t. I wanted another drink, so I stayed behind. I knew most of the people who hung out there. I remember we were talking about how the Penguins had won the game. Then I went to the washroom.”















Comments (2 comments)
Anonymous: Dear Sandy Naiman,
Thank you for bringing mental illness and some of the issues surrounding it to the attention of Canadians. While I appreciate the subject matter, I fully disagree with the tone and approach taken.
Perhaps there are some people with mental illness who find ways to “function” and “heal”. Suggesting that this is a possibility for everyone is absurd, and leads me to believe that you have little or no experience with mental illness.
The pharmaceuticals available on today’s market are nothing short of a blessing. For many people with mental illness, the medication they take is what allows them to function and heal within today’s society. I’m not saying that there is no benefit in hope, personal responsibility, education, self-advocacy, and support, or even a bath.
To suggest that those are the only things necessary to overcome mental illness seems to imply that those who do rely on medication to get through every day are weak, and/or lazy. This is, of course, absolutely false. Being able to come to terms with the fact that one must rely on medication is one of the most significant realities a person has to face.
Due to the already existing stigma surrounding mental illness, the pressure to not rely on medication is high. The last thing those battling with these illnesses need is another misinformed person publishing an article telling them that their medication is not necessary.
Sincerely,
A loved one of person with bipolar affective disorder, who also once thought that medication was not necessary (and was proven wrong).
January 17, 2009 11:30 EST
Mary: Dear Anonymous
I wanted to comment on your letter that you wrote regarding the mental illness article.,
First let me start by saying my name is Mary, one of the person mentioned in the article,
I was labelled with a mental illness over nine are ten years ago and seen by four different,
Psychiatrist witch each one labelled me with a different mental illness and for several years was on and off medication, and off medication at one point for about five years. I feel sandy did a excellent job on her article and gave proven facts about people that were labelled with mental illness in Canada and around the world that live a productive life and heal without medication. What I’m have trouble understanding is how can psychiatrists diagnose a patient with a mental illness just by the patient answering a couple of question and checking off some answer from a piece of paper. I also do not feel cause a person has a crisis are situation are maybe even trauma in there life that they have a mental illness cause if that was the case a large majority of people in Canada and around the world would be diagnose with a mental illness, I feel a lot of psychiatrists take the easy way out by prescribing medication to there patients and sending them on there way, without asking them how they feel are giving them a chance to talk. What ever happen to talk therapy
Self help programs are maybe taking a bath. However I do feel there are people that need medication to function and heal. Also in reality a lot of the side affects from the medication can cause serious problems
In the long run for an example liver, kidney problems heart failure and even memory loss so I do not know how psychiatrist can prescribe something to make patients function are heal but in the long run can cause serious damage. Myself finally in 2007 was labelled with bipolar disorder and a couple more disorders
I take one pill a day not even everyday to help me sleep and I live a productive and normal life.
Where on the other hand I have been to some group homes were people labelled with mental illness live and the majority of the people that live in them homes are so over medicated that there just like vegetables and do not live a productive life are not healing. I want to add one more thing that I found on a business card that was writing from a psychiatrist it reads. “Everyone is depressed anxious, paranoid, and “cuckoo crazy”; it’s just a matter of degree.
Mary.
January 22, 2009 14:58 EST